Oh my goodness, Laurie SNAP! I am just home after being ambo'd to the city hospital yesterday morning due to being bunged up & having the worst colon pain ever! It eventually settled down with more morphine & Fentanyl - a new drug to me.
I am sorry you got so ill on the med. you were given😩 Is it another one that needs added to your allergic list? The seizures you're having must be so scary! Glad they've seen them first hand as they'd probably be difficult to describe, are they? Also so pleased for you they've ruled out epilepsy👍
Do you have existing nerve pain in lower abdomen area? I do, have from an old spinal injury and sometimes when coughing whilst sitting, I get a weird sensation come over me & get hot & cold sweats, a bit light headed and my arms & legs jerk & twitch and get sharp nerve pain & tingles travelling down my legs to my feet - which are well n truly knackered from 35 yrs of Rheumatoid.
I had some more of those gorgeous pix taken yesterday 😍 lol. My inners sure are a sight to behold😂 I show them to every Dr & nurse who is interested.
The radiographer in charge was compassionate enough to come and tell me on the quiet that my x-rays showed I needed other imaging done, like a CT, and if not done last night, one of the specialists I see should be referring me for it soon.
I had quite an argument with a young Dr in A&E who thought he knew it all so I whipped out my images & told him to go and look at the images in my file rather than just reading a two or three report, which in my mind, minimises my problem.
He did so and came back with a better attitude - saying he could see the Diverticulitis on the 2015 colonography and it should indeed have been noted on my records. He is writing to my surgeon and recommending I have a CT before surgery and perhaps rethink the procedure I need - maybe a resection, or a stoma, rather than a total colectomy and an anastomosis.
I've had more than enough years of living with dribbly bum & fear of not being able to get to a loo quick enuff when I'm out, keeping me housebound! If I can have a CT done at the hosp. we won't have to spend precious $thousands on having a colonoscopy done in the private sector.
I truly hope you don't have to wait too long for your CT. Hopefully we'll both get some answers soon.
Hope your feeling better and resting up. 🥰🥰
@annewithane
Hello again, Anne. Thanks for the update on this journey we call Life. Gosh, I'm very empathetic with your latest ambulance trip, and bravo in standing up for yourself to bring that dismissive doc current on your chart(s)! I had the same experience with a dismissive nurse or two at my hospital. I have the unfortunate "luck" of looking 25 years younger than I am and as Rodney Dangerfield would say, "I don't get no respect" when the little old lady in the next bed is fawned over and coddled and I'M THE SAME AGE!! Hahaha.
It sounds like things turned out for the best for you eventually though as far as things moving forward in a much better and more scientific way.
My lunch time is upon me just now so I have to go, but I do have some hopeful news to relate regarding an actual diagnosis. More later...
Keep the faith, kid. We'll get through this.