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Vibration, twitch and pain

Brain & Nervous System | Last Active: Oct 13, 2022 | Replies (11)

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@rwinney

Hello @tkeyler, welcome to Connect. I'm sorry to hear you've been diagnosed with APS. What steps are being taken to help control and prevent complications of the disorder?

Timing really stinks to have neurological complications also. It's great that you are in with Mayo Clinic. When I began experiencing symptoms like you describe, I had extensive bloodwork panels run. Deficiencies such as B12 can be a contributing factor to neurological dysfunction. Diagnostic testing like a nerve conduction study, EMG and MRI's may be run, and as you mentioned genetic testing. A neurologist may opt for a skin punch biopsy as well.

When is your appointment scheduled? Was this your first time meeting with Mayo neurology and rheumatology?

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Replies to "Hello @tkeyler, welcome to Connect. I'm sorry to hear you've been diagnosed with APS. What steps..."

Hi Rachel,

Started plaquenil and need to figure out the anticoag portion - still on eliquis, but warfarin recommended. I too have had very extensive blood work done, but nothing abnormal found other than the IgG and IgM cardiolipin antibodies. I also had EMG done (not pleasant) at Mayo and it was normal. Had brain MRI (normal) but multiple people now have recommended skin biopsy - will bring that up at next appt. I meet with cardio on Halloween, ophthalmology in middle of Nov, then again with neuro to discuss the genetic test results shortly after that. Yep, first meetings with rheum and neuro. Been digging into the primary lit, and see there are neuro complications with APS - will paste with this post.