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DiscussionNon-Length Dependent Small Fiber Neuropathy
Neuropathy | Last Active: Oct 4 4:36pm | Replies (131)Comment receiving replies
Replies to "I have read a lot of everyones stories. I have a question of everyone who was..."
Sadly, I agree that so many disorders and diseases end up being handled by treating the symptoms. I also agree that you can't give up and you have to really push hard on your healthcare providers as you advocate for testing or getting questions answered. I am fortunate that, so far, my Neuro wants to explore every option to see if we can find out the underlying cause to my NLD SFN. Good luck!
Hi @rnlorena - I have had small fiber PN with just the numbness and some tingling for more than 20 years (almost 80 now). My heart rate also seems to jump around but not normally over the mid 90s unless I'm exercising. I have one of those Kardia mobile devices that I use for taking an EKG and was in a panic the first time it told me I had signs of AFib but really didn't feel any different than normal. It regularly shows my EKG as Sinus Rhythm with Supraventricular Ectopy or Supraventricular Tachycardia. Early on I showed it to my PCP and at first they were concerned but then after checking said it wasn't anything to be concerned with. The Kardia app does tell me the same thing that this can be present in healthy adults and in adults with heart conditions.
I do think it's worth getting it checked out. I know it can be difficult to get an appointment at Mayo due to the overwhelming number of patients seeking help during this current environment. Have you thought about checking at a Mayo Clinic Care Network location?
The Mayo Clinic Care Network is a select group of independent health care providers, carefully vetted by Mayo Clinic and granted special access to Mayo's clinical, educational, research and operational knowledge, expertise and resources. Here's a complete list of Network members with links to their websites:
– https://www.mayoclinic.org/about-mayo-clinic/care-network/network-members