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Living with lung cancer - Introduce yourself & come say hi
Lung Cancer | Last Active: Sep 25 12:58pm | Replies (1044)Comment receiving replies
They don’t want to tell me anything until after the next 2 tests are done however all results of test are on the web through a MyChart app. Of course I don’t understand a lot so I have to research the terms. I don’t see that they ran geo testing on the biopsy and that concerns me after reading through answers on this page. That’s one of the questions I’m going to ask on Oct 10th when I go for my results. I know from the results I have adenocarcinoma.
Replies to "They don’t want to tell me anything until after the next 2 tests are done however..."
Sheri- I am not able to read CT scans. But it looks like, from what is written under the photo, there does seem to be a mass. Genetic testing takes a while for the results to come in. The gene testing should have been a part of the biopsy. Do you have those results yet? If not then call to make sure that it was done. I'm sure that your tissue sample is still available for testing if it needs to be done.
I'd make a question list and make sure that you get answers for each one. You are entitled to answers. A gene test is a necessity so there isn't a reason for it not to be done. Insist on it!
I'm sorry that your outcome was not what you had hoped. I was a heavy smoker also. Have you quit smoking yet?
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Waiting for results and appointments is so difficult. It’s likely that a lot is happening during this time, even though it feels like nothing is happening. The docs are coordinating and lab tests are being completed. The MRI and PET will be help to know if the cancer is contained to the lung. And the biopsy tissue is likely being tested to see exactly what type of cancer it is, and if it is expected to be responsive to certain therapies.
Hopefully they have good options for you at your next appointment! Take care, hang in there, Lisa