Connect
← Return to Prednisone tapering is challenging. What does remission feel like?
Discussion
Prednisone tapering is challenging. What does remission feel like?
Polymyalgia Rheumatica (PMR) | Last Active: Sep 3, 2023 | Replies (209)Comment receiving replies
I was diagnosed in May 22 but didn’t start treatment until June. I really wanted my Orthopedic doctor to weigh in on the diagnosis from my rheumatologist. When the 2 were in complete agreement, I was forced to accept the new reality. I am tapering—down to 15 mg but all of this PMR hip pain is new. I am doing fairly well but definitely notice new pain in the AM and at each taper. It does resolve after I take the prednisone but does make me wonder what life after prednisone looks like. I think we are all learning from each other. Good luck!
Replies to "I was diagnosed in May 22 but didn’t start treatment until June. I really wanted my..."
Connect
Hi Sandi, I recall being anxious and wanting to taper quickly and wishing the PMR would be cured. I hope your journey is quick. Mine has not been unfortunately . I tapered to 8 mg within a year, I started getting GCA symptoms. I had to ramp up to 40 mg, then tapered quickly to 25, then the slow process again. Once again this past January I had another relapse with excessive, unrelenting PMR back/ hip pain. Back up to 40, then more swiftly to 15 ( within a month). I’ve been tapering VERY slowly since then. Now at 5 but having some difficulty so holding tight at this level.
I’ve had a roller coaster experience, and not sure if it’s typical or not.
Given the new symptoms of numbness in my leg/ foot I’m really thinking it’s a pinched nerve/ some of my lumbar stenosis showing itself. Again hoping your journey is shorter than mine.