Hi, John! Thanks for responding!
I waited 5 months to get my CPAP machine due to the supply-chain issue caused by the National recall of some Philips machines.
I got a ResMed AirSense 10 AutoSet with heated/humidified hose.
The first mask I tried was a ResMed AirFit F30i. My issue was that it covers nose and mouth with a silicone piece that drapes under the nose, and having had sinus surgery, it was hard to keep the nose piece and vents centered under my nose. My turbinate bones were removed and my nostrils pinch shut easily. I felt like I was suffocating.
My sleep med NP gave me a sample Philips Respironics Dreamwear mask with silicone pillows to try. I really liked it but had too much mouth breathing.
The mask I’m using now is a ResMed F20 full face mask with memory foam cushion. I love it!
I sleep mostly on my sides and the face mask is sloped steeply enough that the mask doesn’t make much contact with my CPAP pillow. It’s very soft, yet has the fewest air leaks of all! It has to be replaced monthly, but is well worth it. Really easy on-off with opening in front so I can talk and sip water through a straw. I don’t have dry mouth issues that require drinking water constantly and then getting up to pee all night.
I have been sleeping through the night most nights.
I have developed significant Treatment-emergent CSA (18.6) with Cheyne-Stokes respirations and will have an in-lab sleep study tomorrow night.
Wondering if breathing issues are related to SFPN. I also have Gastroparesis and GI motility issues.
Research has shown that up to 40% of FM patients have SFPN (SFN) when skin biopsy is done.
There are so many overlapping symptoms and conditions and their treatments are sometimes opposite! My doctors have told me they that’s why they need definitive proof before offering treatment or suppressing my immune system.
We are called patients because it takes patience to find answers.
Take good care of yourself!