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Non-Length Dependent Small Fiber Neuropathy

Neuropathy | Last Active: Nov 27 9:39am | Replies (135)

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@trudi22

Sounds like me almost. Anyone just suffering from tingling and numbness can thank your lucky stars. However, that's how mine started 3 years ago (at least the diagnosis of small fiber neuropathy). The litany of diagnoses I've had through years of migraines, g.i. problems, connective tissue problems...all before I was diagnosed with SFN. Focus to today. I'm on my 4th day of a "flare up" (for lack of better term) where all my symptoms; eye pain, muscle spasm, nerve pain, facial pain, earache, g.i. problems etc al ..at once rendering me dizzy to the point of nausea, off-balance and unable to drive, or work...but, they cannot do anything but "treat the symptoms as they come..." Newest to the lineup: uveitis (secondary, of course). I'm laid up so often, I get to work from home now without question (good people I work for) . The rare days I feel ok; I praise the good Lord for the blessing and always for my ability to see my family to remind me how lucky I am to be a Mom and wife in a wonderful, understanding bunch of people.

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Replies to "Sounds like me almost. Anyone just suffering from tingling and numbness can thank your lucky stars...."

do you have Igm mgus which can cause this i.e. abnormal blood cells and does it cause incontinence and excessive urination which i have and insomnia and extreme weakness and fatigue

Ooh, yes, the vertigo! Thankfully I’ve have that since birth, so it doesn’t make me too bad mostly. Does make me a terrible passenger though. I get episcleritis where my eyeballs peel - boy did that freak out the local GP 🤣 I have also developed Fibromyalgia as a co- disorder which is just great (sarcasm) In the end I retired, thankfully on my full pension, with an understanding husband who now does all the cooking thanks to sudden nerve jerks from pain stabs meaning I’m prone to throwing things by mistake 🤷🏼‍♀️🤦‍♀️