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Non-Length Dependent Small Fiber Neuropathy
Neuropathy | Last Active: Apr 18 7:03pm | Replies (131)Comment receiving replies
So far, it hasn’t really helped much. Perhaps takes a bit of the edge off the symptoms. 900mg a day did seem to help for a month or so, but it stopped helping at all about 6 weeks so here I am at 2700mg a day. Definitely depends on my activity throughout the day. I walk a lot at work and the more I walk, the worse the symptoms are. Walked over 5 miles today and my feet are on fire as well as tingling and pain. I hope the 2700mg dose kicks in and helps soon. It’s very frustrating.
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So, what I've learned so far after a decade of progressive nuerapathy in my feet is this. The more load I put on my feet the worse it gets during the day. I do 900 at 8 am again at noon and at 4 then 600 at 8 pm when not on my feet so much. If it gets on fire I will rub lidocaine 4 milligram ointment on my feet and that puts out the fire in minutes but only lasts an hour or so. I've tried many different therapies and doctors. Different things seem to work for different bodies and sometimes we develop tolerances for a particular drug and must try something else. Research is a good thing but it's progressive and with over 100 different kinds of nuerapathies and little concensus on treatment we can only hope for better answers. John