I’m sorry you’re dealing with this. It’s beyond frustrating.
I too had a delayed diagnosis of MBC because no one could figure out (7 doctors) my shortness of breath and why my one area of my lung was narrowed. Long story short, after a second bronchoscopy, it was a lymph node narrowing and causing the collapse of one of my lungs. I dealt with it for 11 months before they figured it out and that was without treatment. I started on Verzenio and Faslodex (after a week approval process) and within three months my scans showed no evidence of disease. I’m HR + HER 2 -
I understand your anger. I was beyond disappointed and felt completely ignored. I had to fight to get others to understand what I was feeling and that irritated me because it wasn’t anxiety, but it sure did create anxiety after so many months of dealing with many that didn’t move forward correctly.
I was also angry at myself for not demanding a PET scan. I’m an RN and should’ve known better but relied on my team to take care of everything. Well, now I have a great care team and I don’t sit back.
Stay persistent. Keep us posted !