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Diagnosed with DCIS: How do I decide on treatment?

Breast Cancer | Last Active: Mar 20 10:00am | Replies (345)

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@callalloo

I hope you consider getting tested for osteoporosis, given your mother's medical history. This is one area where lack of knowledge can put people at unnecessary risk and knowledge can lead to treatment.

For what it's worth, my oncologists aren't overly concerned about micro-calcifications unless occur with other cancer signals. That might vary from patient to patient or differing levels of dense tissue or something. But they don't routinely remove them absent other markers of risk.

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Replies to "I hope you consider getting tested for osteoporosis, given your mother's medical history. This is one..."

I’ve been doing extensive research into treatments & side effects. I’ve seen the Oncologist & the Radiology Oncologist. The surgeon & both Oncologists have recommended 4 weeks of high dose radiation for my small area of DCIS stage 2, ER/PR+.I understand that this is the “standard” treatment plan. I don’t want a standard treatment, I want a treatment plan that is specific to my situation!! My pathology on the lumpectomy (9/21) showed NO DCIS present so it was all removed with the Stereotactic biopsy. I’ve told all dr’s that I’m not deciding on any treatment until I get further testing. The Oconotype DX DCIS genomics test was just ordered yesterday to help me decide on radiation & meds. I have a DEXA scan to check my bones & a blood test to check my vitamin D levels scheduled mid Oct. to help decide on hormone suppression meds. A pre-op chest X-ray showed I have plaque with calcifications in my Aorta so I’m seeing a cardiologist 11/1 to check that before I decide on radiation/meds. I’ve seen numerous reports that breast radiation can affect the heart & bones. My DCIS is in the right breast which would lessen the heart damage risk. I’m currently very hesitant to get the radiation for the DCIS (can only radiate each breast 1x). Since I now have a higher statistical chance of an invasive cancer in either breast I think I may want to save radiation in case of something invasive or a reoccurrence of the DCIS. If I get radiation now & if there is a reoccurrence in the same breast my only choice would be a mastectomy. I’d like to keep the option for another lumpectomy & possible radiation in case of reoccurrence or especially an invasive BC. I’m hoping the Oconotype test will agree with my “uneducated” school of thought. Once all testing is completed, I’ll use that information along with all the doctor recommendations to decide on my best treatment plan. I may even seek a 2nd opinion before I decide depending on the outcome of testing. It’s a timely process but I strongly believe that educating yourself using several sources is the smartest thing to do so you can be involved in what treatment is BEST for your particular situation. There are so many variables to each persons case I’m not convinced that “standard” treatment should be used for everyone as suggested. There is new information out there that says radiation may not be necessary for everyone’s situation. Radiating your body is a life long decision since the effects last a lifetime.