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Complex endometrial hyperplasia with atypia

Gynecologic Cancers | Last Active: May 13, 2023 | Replies (29)

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@meandmsjones

Christie,

Did you get a CT scan? My doctor said there was no reason to do one, and I'm disappointed in that. I would think they want as much info as possible for the surgery. I'm also getting concerned that insurance might decline my surgery without it. I had my pre-op yesterday and they were not even going to do any bloodwork before my surgery. I have no idea where my estrogen/progesterone levels are going in. I'm frustrated to say the least. All I can do is be at their mercy while I keep trying to advocate for myself.

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Replies to "Christie, Did you get a CT scan? My doctor said there was no reason to do..."

No CT scan, no immediate US upon my initial complaint. from my gyn despite my age and risk profile. My PMD ordered it a month latter. No ca 125, no PET scan after my diagnosis to look for active sessions. I did get a CT of the chest, abdomen and pelvis which has 2 concerning findings. That is why I requested the PET scan. My 2 friends who are being treated at the university cancer center in my area both received and continue to receive surveillance PET scans. I am on the wait list to transfer my care there after one chemo treatment. I will now have medicare and an excellent PPO so more choices. They did do blood work (CBC and comprehensive panel) and an EKG prior to surgery .