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Tegretol for Length-Dependent Small Fiber Neuropathy

Neuropathy | Last Active: Jan 13, 2023 | Replies (4)

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@johnbishop

Thank you for starting this discussion @julbpat and sharing how doing your own research and being a better advocate for your healthcare has made a difference. It's good to hear your doctors were willing to give it a try!
Was this one of the research articles you found?

-- Carbamazepine for acute and chronic pain in adults:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4160789/

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Replies to "Thank you for starting this discussion @julbpat and sharing how doing your own research and being..."

Hi John. When I was preparing for genetic testing, I did a lot of reading about voltage-gated sodium channels, and genetic mutations. That's where I saw the reference to Tegretol (carbamazepine) - buried in an article about treatments for certain genetic variants. Turns out I didn't have one of those variants, but since the Tegretol therapy has been kind of amazing, maybe it means something!