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Non-Length Dependent Small Fiber Neuropathy

Neuropathy | Last Active: Apr 18 7:03pm | Replies (131)

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@nitsirk

Hi, Sounds similar to mine, which is Wartenbergs Migratory Sensory Neuropathy, a catch all for whats left after ruling everything else out! Mine is very likely autoimmune just going by medical history. Gabapentin didnt help me at all, but mucked up my speech! I am currently slowly switching from the general pain meds/antidepressants used for neuropathy to medical cannabis. Ive had it for 17 years, and its relapsing/remitting. Acupuncture has helped a lot too, especially when one nerve branch gets too out of control. I also get crawling, itching, numbness, hot/cold patches etc etc. Mine started in my feet, but can now be randomly anywhere. I just tend to think that 400 years ago I would either be being exorcised or burnt at the stake 🤣

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Replies to "Hi, Sounds similar to mine, which is Wartenbergs Migratory Sensory Neuropathy, a catch all for whats..."

I understand the feeling, you mention using medical cannabis, I live in a state that very much discourages this option. Do you get a prescription for yours? I feel it would help since my box of lotions, gels etc do very little. Lidocaine seems to help off and on, so does Topricin, but nothing helps enough.

I will check with my Neuro and see. I am still at the "what might be causing it" stage. Still feel it is my long-time Autoimmune though none of the bloodwork points to it. Thanks for your comment. Neuropathy is so hard to describe to people because of all of these sensations happening at once. People tend to think them as a one at a time process. It is frustrating all around: the symptoms, the length of time to diagnose, the expense involved with some of the tests and then the mental part of the "wow, I have a lifelong condition that may get a whole worse but you can't tell why I have it" . Hope you are doing well. Hang in there!

Sounds like me almost. Anyone just suffering from tingling and numbness can thank your lucky stars. However, that's how mine started 3 years ago (at least the diagnosis of small fiber neuropathy). The litany of diagnoses I've had through years of migraines, g.i. problems, connective tissue problems...all before I was diagnosed with SFN. Focus to today. I'm on my 4th day of a "flare up" (for lack of better term) where all my symptoms; eye pain, muscle spasm, nerve pain, facial pain, earache, g.i. problems etc al ..at once rendering me dizzy to the point of nausea, off-balance and unable to drive, or work...but, they cannot do anything but "treat the symptoms as they come..." Newest to the lineup: uveitis (secondary, of course). I'm laid up so often, I get to work from home now without question (good people I work for) . The rare days I feel ok; I praise the good Lord for the blessing and always for my ability to see my family to remind me how lucky I am to be a Mom and wife in a wonderful, understanding bunch of people.