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Chronic severe nocturnal hypnic headaches

Sleep Health | Last Active: Oct 4 1:13am | Replies (240)
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@akalsas

Thanks for your insight. Tried caffeine before bed and multiply other supplements as well as meds which caused side effects. My h’aches are ever changing , at different times of the night, from mild to intense, have tried acupuncture, chiro, direct electrical modulation , message , now using cft ( jury out if any help with h’aches but great for loosing my movements ). Have you read re the glymphatic system of the brain? Researching if this would be cause of problem. Must praise the Lord that this was the first morning in weeks that I awoke naturally after a night of 2 h’aches.

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Replies to "Thanks for your insight. Tried caffeine before bed and multiply other supplements as well as meds..."
taterjoy | @taterjoy | Sep 27, 2022

So glad you had fewer headaches last night! Maybe CFT is helping. I have not tried it. If I didn't have indomethacin that is so effective most of the time (along with melatonin, caffiene, and my migraine preventative CGRP injections), I'd be trying everything possible all over again. My Mayo headache specialist reviewed every prescription, every OTC/supplement, and every non-drug & lifestyle method I'd tried for 60 years, and found I had tried everything at correct (or higher!) doses. The only thing I had not tried for the migraines was a CGRP as my insuror would at the time, not provide it on furmulary nor RX it even for me to take to an outside pharmacy as a self-pay.

The CGRPs have changed my life immeasurably. If your noctural headaches could possibly be migraines instead of hypnics, the CGRPs might help you. (maybe you have already tried them all--each is slightly different). Both Emgality and Adjovy have helped me tremendously with migraines, and only a slight impact on intensity of nocturnal inflammatory headaches). Praying you will get fewer and less severe headaches going forward. And much better sleep and quality of life!

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