How to manage SIBO symptoms?

Posted by jacque6977 @jacque6977, Feb 22, 2017

My wife, after years of suffering from debilitating nausea and fatigue, has finally been diagnosed with SIBO as confirmed by a hydrogen breath test. It is estimated the bacteria has had at least two years to grow and may be well established. She has started on Xifaxan, at $35 per pill, but it is estimated that elimination of the SIBO may take up to six months. Her day now starts with her waking up with nausea and when she has a cup of tea and toast in the morning she gets sick within fifteen minutes thereafter. Her sickness is accompanied by violent belching, and at times she regurgitates liquid vile. The only drug she has for nausea is Zofran which does nothing for her. Are there any other SIBO sufferers that are experiencing the same symptoms, and what are you taking to reduce the nausea?

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Profile picture for mariajean03 @mariajean03

I'm suppose to go for a SIBO test in Iowa City but have no vitamin definciencies. All bloodwork is great with no belching or heartburn! I've been under tons of stress these last 8 years and really believe it's IBS-D. I also know breath tests provide false positives. Should I follow my instincts? Maria.

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Anyone know who physicians in the minneapolis and st paul area in minnesota who will do a SIBO test?

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Profile picture for mariajean03 @mariajean03

I'm suppose to go for a SIBO test in Iowa City but have no vitamin definciencies. All bloodwork is great with no belching or heartburn! I've been under tons of stress these last 8 years and really believe it's IBS-D. I also know breath tests provide false positives. Should I follow my instincts? Maria.

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Yes, follow your instincts. I had SIBO and am experiencing a relapse. May I ask who your physician is in Iowa City? I am in Iowa and seeking physicians that offer that test and others, and accept Medicare. thanks.

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I was diagnosed with SIBO about 8 months ago and suffered severe nausea until I went on the low fermentation diet recommended by the major SIBO researcher in the US, Dr. Mark Pimentel. He also recommends NO SNACKING between meals which is hard for me as I have always been a grazer when it comes to food. He also recommends four hours between each meal. I have greatly benefited from his YouTube videos where he discusses his research results.

Carol

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Profile picture for carolmaeray @carolmaeray

I was diagnosed with SIBO about 8 months ago and suffered severe nausea until I went on the low fermentation diet recommended by the major SIBO researcher in the US, Dr. Mark Pimentel. He also recommends NO SNACKING between meals which is hard for me as I have always been a grazer when it comes to food. He also recommends four hours between each meal. I have greatly benefited from his YouTube videos where he discusses his research results.

Carol

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Did you take antibiotics ? Which ones ? How long?
Herbal treatments?
Which test did you do to know you had SIBO?
Thank you!

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Profile picture for kitty2 @kitty2

Who did you see at Mayo..so far the gastoenterogists I have seen refuse to test me for SIBO.." I already know you have ulcerative colitis that went untreated for 10 months, I do not want to go looking for anything else. No one will listen to me, just want to throw steroids and IV biologics at me. I have not been able to get a full colonoscopy to see whats going on , I have been waiting now 10 months. I had a flex sigmoid in May and CT scans that showed I have ulcerative colitis. I spent four days in the hospital and a lot of work because of this , anyone know a GI doctor who cares enough to listen to me and believe me. I just want to get better so I can have somewhat of a life again. I live in Minnesota and am in the Minneapolis are. Anyone have a good kind doctor that is willing to listen to me? Thanks Kitty2

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You might want to see a functional medicine doctor. I have been seeing Dr. Kyle Pankonin, a chiropractor who practices functional medicine. He is in Lamberton, MN. It would be quite a ways for you to drive, but give him a call, he might be able to refer you to someone closer to you. His phone number is507 752 7650. Found issues that weren't tested with regular doctor. Thyroid issues for one. Gut issues resolved as well. It takes time and focus to get to the root cause of what you have going on. We are not a one size fits all. Don't let any doctor put you in a box with everyone else. You are you.

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Profile picture for renhandi01 @renhandi01

You might want to see a functional medicine doctor. I have been seeing Dr. Kyle Pankonin, a chiropractor who practices functional medicine. He is in Lamberton, MN. It would be quite a ways for you to drive, but give him a call, he might be able to refer you to someone closer to you. His phone number is507 752 7650. Found issues that weren't tested with regular doctor. Thyroid issues for one. Gut issues resolved as well. It takes time and focus to get to the root cause of what you have going on. We are not a one size fits all. Don't let any doctor put you in a box with everyone else. You are you.

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Hi..no one wanted to test me for the SIBO..I do have severe ulcerative colitis..so they said they would not test me for the SIBO...It has been a very frustrating 12 months to say the least..thanks for the phone number for Dr. Pankonin. Thanks so much...kitty2

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Profile picture for johnbluffside @johnbluffside

Did you take antibiotics ? Which ones ? How long?
Herbal treatments?
Which test did you do to know you had SIBO?
Thank you!

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I took a breath test for the SIBO diagnosis. It tests the gases you exhale after a day of bland diet and then a dose of lactulose in the next morning. I exhaled methane which indicative of SIBI-C. I took Rifaximin for two weeks but it did not cure it. Helped with the nausea but not much.

I am about to try Rifaximin with Neomycin for two weeks to see if that can knock out the unhealthy bacteria overgrowth. You can get MUCH CHEAPER Rifaximin from online Canadian pharmacies. Perfectly legal. Have not tried herbal treatments but might some day. I have started using Nature's Secrets Colon Cleanse which is producing small bowel movements at the moment. It does not feel like a stimulant more like a prokinetic formula. Hope that helps.

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Kefir is good for sibo according to some doctors while others say bad bacteria may grow. It helped you. So glad.

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Can’t help Some of the issues. But the Canadian pharmacy has much cheaper price fir Rifaximin.

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Profile picture for lighthouseceliac @lighthouseceliac

Alka-Seltzer helps my nausea. Pepto too.

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This was written a few years ago. The alka selzer is an nsaid and it a suspect along with statins with me developing microscopic Colitis. I now only take very sparingly the UP brand acetaminophen from target. Pepto (UP brand 5 symptom) gives me nervous spells.
With celiac always be on the lookout for other diseases. Don’t blame everything on a celiac spue diagnosis.
Celiac is easy colitis is a beast.

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