Hi Karen-
I hope this finds u well. Can u pls remind me which group or what diseases that u r facing so that I may send appropriate materials.
Lisa

Osteoporosis: an ignored complication of CVID
Safa Baris et al. Pediatr Allergy Immunol. 2011 Nov.

Karen, I have no experience with this condition or its association, if any, with osteoporosis. But I found this article in the Cleveland Clinic Journal of Medicine that has a lot of information. You can read it online or download the PDF.

One of the best things about such articles, and research studies is that you can also look up the author(s) and start to build a data base of people working in that area. That can be particularly helpful if one is trying to learn more about, or get treatment for, something uncommon. People tend to specialize in areas that interest them a lot and loke to talk about them. I've called specialists whose names I found this way and, in one instance, got referred to an excellent physician in my area. Hope this is some new info.

From the CCJM;
"Evaluating and managing hypogammaglobulinemia"

Hi Karen, how did it go at the immunologist? And as for the osteoporosis, have they started u on any bio phosphates or injectable’s? I hope that u r on gamma globulins and r feeling better!
Lisa