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LCIS: What treatment(s) did you choose?

Breast Cancer | Last Active: Dec 17, 2023 | Replies (32)
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@delormv

Hello @lisakinpa ,

I have been diagnosed with atypical lobular hyperplasia (ALH), which I know is only a marker for cancer, but I am getting a second opinion about whether it should be removed. I understand that you have been diagnosed with LCIS and was wondering if you had any treatment for it. It is written that your surgeon wasn't concerned, so what was recommended? I'm just trying to find out more information that would support the "wait and see if cancer pops up" approach, or if I should get it removed since cancer is at times found when ALH is removed. Thank you! @delormv

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Replies to "Hello @lisakinpa , I have been diagnosed with atypical lobular hyperplasia (ALH), which I know is..."
kel6022 | @kel6022 | Oct 6, 2022

My doctor enlisted me into a breast cancer group. I have a mammogram and discuss with radiologist immediately. Six months later, I have an MRI, and again, immediately talk with radiologist. This team of doctors only deal with breast cancer. Come to find out, this “suspicious “ group of cells that warranted a biopsy, has been there since 2019. No radiologist had suggested it needed any kind of attention. Needless to say, I was shocked.
Because my doctor is a breast oncologist, I’m trusting her suggestion of wait and see. If any changes occur, I will be going for a bilateral.

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