← Return to Low grade ureter and renal pelvis kidney cancer diagnosis.

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@pcondon

Colleen...my local urologist earlier this month discovered a second cancer in my renal pelvis. About 15 months ago he burnt off the first discovery of cancer in the same ureter but not as far up into the kidney. At that time he simply recommended a wait and watch approach. At that first finding, I did some research and found Jelmyto proceedure on line. I brought it to the doctors attention but he was not familiar with the process. He preferred wait and watch and the burn off trestment.Now, with his second cancer discovery the doctor discussed getting Jelmyto treatments...but he is still personally unfamiliar with the treatment process. He nor any one in his clinic has ever administered the treatment. His comment was, "I think I can do it." My research shows numerous possible side effects and very detailed administration proceedure to properly administer the treatment. If I do have a complication, I think a doctor with previous experience might be my preference. Looking for feedback from a doctor or a series of patients with first hand experience with Jelmyto. Curious also to hear from Mayo doctors and patients about the cancer reoccurance rate following the proceedure. FDA clinical trial results show a very limited number of trial patients in the study and only about a 50% initial success rate. A high percentage of cancer return. And a high number of various complications. Looking for some positive reassurance from doctors or patience that have personal experience. I will be looking for ya'll to reply. Thank you.

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Replies to "Colleen...my local urologist earlier this month discovered a second cancer in my renal pelvis. About 15..."

I was diagnosed with Upper Tract Urothelial Carcinoma a few weeks ago. (Low grade, non invasive) My urologist did some research and found Jelmyto. He has not administered it Jelmyto but I have an appt with another dr in his practice on Monday to discuss this option. The only other option is removing my kidney so I am willing to try this treatment. I found the original trial for Jelmyto on line. It was called the Olympus trial. There are many YouTube videos about it too. I would like to save my kidney if possible. I cannot find any follow up information on the original trial patients and I find that odd. It’s all very frustrating.