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Complex endometrial hyperplasia with atypia
Gynecologic Cancers | Last Active: May 13, 2023 | Replies (29)Comment receiving replies
I seem to have unexpectedly found myself in this very similar situation…. So I’m a little overwhelmed. I’m 69, been menopause since 35 without problems.
Mentioned odd pelvic feeling in June at PCP physical - no symptoms or real complaints. Had an Ultrasound that showed 7mm uterine thickening, , so was sent to gyn for vaginal ultrasound follow up after 2 month wait… now 12 mm and 2 ‘cystic structures’ …. NP offered in office biopsy or out patient D&C, choice of referral to one of their gyn surgeons or referral to gyn oncologist- and told me to expect a hysterectomy!
I chose to just have appt with the oncologist Friday - after some reading others experiences, and treatment options Im ready to just get the hysterectomy. I guess my question is can I hope for that to be done without more tests/biopsy after the removal?
Replies to "I seem to have unexpectedly found myself in this very similar situation…. So I’m a little..."
Good morning,
Ask for a CT of the pelvis and abdomen with contrast. Its quick and might expedite your care and diagnostics.
All blessings,
Christine
Hi drk. Looks like we will be going through this journey together! Wishing you peace and wonderful medical care a you move forward on your journey. Let us know what your oncologist recommends. I'll be curious to hear how it may differ or be similar.
I can tell you I am age 49, soon to be 50, and still having regular periods. I have always had regular periods with no real issues as some people do. I was recommended complete hysterectomy, cervix and ovaries too, as well as lymph node removal (two closest to uterus). It's the most aggressive treatment path. I have done my research and have a list of questions to go back to my surgeon with, and am seeking a second opinion from Mayo. My surgery is scheduled for Oct 17th. I'm a hot mess to say the least as this was all so unexpected, and I am concerned about long term health effects of having no ovaries, and balancing that with the risk of cancer. Sending you peace as you head into your appointment.
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@drk. Is your appointment this coming Friday, on September 30? It's really good that you got in for an appointment so quickly with a GYNOncologist. I'm hoping that they will provide you with good explanations and options for you to consider. It's possible that the GYNOncologist may order more tests to get a clearer picture of what's going on and how to proceed.
I know from experience how frightening this is. How do you take care of yourself when you are worried? Warm baths, going for a walk, visiting with close friends? Do you have someone you can talk with who is a good listener?