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Anyone else have a Redundant / Tortuous Colon?

Digestive Health | Last Active: 1 day ago | Replies (1026)

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@riv2ga

It’s so nice to know that I am not the only one who has been passed off by the doctors. I had a botched surgery so the doctors afterwards would just give me the lame excuse that it was adhesions and that I have to live with the pain. Even at Duke, the same story. No one would note that my colon was tortuous. Attached is the colongraphy showing my torturous colon and was told that my rectus muscles were removed because of necrosis in my original surgery and this removed my support for my intestines. Why couldn’t the other doctors tell me this? Completely understand living with this pain, it is unbearable. Praying for each of you for God’s healing hand and peace and comfort. God bless

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Replies to "It’s so nice to know that I am not the only one who has been passed..."

Hi riv2ga, great to see your colonography pic thank you for sharing👍 but I am sorry you've been through so much too😢 I assume you have a stoma now? And the chronic, acute pain goes on?
Sounds like your Dr's/Surgeons cover each others arses too when the occasion arises 😩 In my last email to the Gastro Dr who will be doing my colonoscopy, I told him I require a written & pictorial record of everything he finds as I don't want my kids or Grandkids to have to produce pix of their 'Mothers' x-rays showing my tortuous colon & gnarly obstruction, to Dr's should they ever develop such bowel problems. I'm expecting to leave the clinic with a copy of the procedure on USB stick.
I have had chronic, very sharp pain in my vagina too since the bowel transit study. Being so blocked up must have created a shift in where a lot of the small loops sit in the lowest part of my abdomen - not even 10mls of morphine, and a full syringe of lidocaine applied internally, can ease it.
I know every little movement/bump whilst having the colonoscopy is going to be very, very painful so will ask my local clinic for a script of the strong numbing gel they use for men having a catheter put it.

Have any of you had such pain caused by your tortuous colon, in the vagina?
Again, thanks for sharing your colonography pix, riv💞
I so wish I'd found this website years ago. If anyone has a story of successful surgery could you please share💞