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Anyone out there with Erythromelalgia?

Autoimmune Diseases | Last Active: May 12 7:45am | Replies (298)
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@cherman

Recent probable diagnosis of Erythromilgia. EM. Have cold feet then hot tingly feet. Some mild red blotches on arms and red palms.
Hot weather bad.
Taking Pregabalin. Who has been successful with this or other meds.

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Replies to "Recent probable diagnosis of Erythromilgia. EM. Have cold feet then hot tingly feet. Some mild red..."
John, Volunteer Mentor | @johnbishop | Sep 23, 2022

Hi @cherman, Welcome to Connect. While we wait for other members to share suggestions I thought I would share the following information I found that might be helpful.

"The aim of these therapies is to reduce the negative effects of stress and pain—through practicing relaxation, reframing unhealthy emotions, and training the ..."
-- The Patient's Guide to Erythromelagia from The Erythromelalgia Association:
https://erythromelalgia.org/wp-content/uploads/2017/09/TEA-PatientGuideBook-1.pdf
The site also has a list of frequently asked questions that you and others might find helpful:
https://erythromelalgia.org/resources/faqs/.

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