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Carcinoid cancer: Want to meet others

Neuroendocrine Tumors (NETs) | Last Active: Aug 23 1:27pm | Replies (169)

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I had surgery for carcinoid tumors in my small bowel and abdominal cavity 12 years ago, at Jacksonville Mayo. The report was that the tumors had metastacized, and they told me that I did not need further treatment, but to watch for the development of carcinoid syndrome. I had one small, fatty tumor on my liver, which has since disappeared. Although I have had no symptoms of the syndrome or regrowth of intestinal tumors (a possibility, they told me), I am wondering if I should have the HIAA and seratonin blood tests done just to see if anything is still active. I had my last check-up at Mayo two years after my surgery, and they told me I did not need to return until I had symptoms. My local doctors think if one is not actively ill, no need for tests. But I worry about what is there, and I should be more proactive about my health. Any advice, here, please?

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Replies to "I had surgery for carcinoid tumors in my small bowel and abdominal cavity 12 years ago,..."

, you had one that metastasized and a spot on your liver.But that disappeared which is wonderful. My question is, did you do anything in particular, that made it go away. And even though you had one metastasized, they didn't do any treatment.I'm just newly diagnosed and still going through this whole process