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Paresthesia, abnormal sensations

Neuropathy | Last Active: Mar 8, 2023 | Replies (85)

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@rwinney

You're welcome. I have Central Sensitization Syndrome (CSS) with underlying conditions of chronic back pain, migraine, small fiber neuropathy and heightened sensory sensitivities. I manage better since going to Mayo PRC almost 2 years ago. Symptoms remain a daily challenge because they're a permanent part of me now but one that I'm better equipped to handle.

PRC offers cognitive behavioral therapy to help deal with loss, grief and much more that's incorporated into living in chronic pain. They also focus on reducing or discontinuing unnecessary meds, which in some case can have an adverse effect on CSS. Learning through therapy helped bring the reality together that chronic conditions aren't going anywhere and how best to work at finding acceptance and strategies for life quality despite them. And of course a big part of management is physical therapy. Motion is lotion as they say in rehab, and finding the proper way to move our bodies and stay active actually helps us more than hurts us. It's about moderation and modification of activities.

How have you been handling loss and coming to terms with your condition? It's a tall order to fill, but can be done with work. Do you speak with a therapist?

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Replies to "You're welcome. I have Central Sensitization Syndrome (CSS) with underlying conditions of chronic back pain, migraine,..."

I find it strange that we are suffering against the plenty who don't and find it hard to understand why? I do speak to the Samaritans but not a therapist per se. You certainly do have a lot to deal with and I thought I was bad enough. It's hard when you have been quite glamorous and suddenly find that is no longer the case there isn't enough room to be even slightly vain. I always took pride in my appearance but I no longer really care because of the pain and duscomfort. Acceptance I haven't reached yet because I hope they may cure it.

=09

Not sure if you got my reply previous to this so I will write again. No I d=
on't see a therapist but do contact the Samaritans when I get very anxious=
=2E You certainly have a lot to contend with and I thought I was bad enough=
=2E I find it hard to accept to the many who don't have these conditions. I=
just hope that they can cure me in some way that's what I am hoping anyway=
=2E It's hard when you have been quite glamorous which I am not now as ther=
e is no room for vanity with these conditions. I wish I could be like you a=
nd accept but it's still early days for me.=C2=A0
=C2=A0