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Anyone else have a Redundant / Tortuous Colon?

Digestive Health | Last Active: Nov 5 4:01pm | Replies (1097)

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@annewithane

Bummer! I just lost my post so will start again.
Do any of you have pix of you x-rays or other imaging of your tortuous colon that you'd like to share?
I posted mine on another thread today but will post them here also.
Screenshot of my tortuous colon via a Colonography I had in Sept 2015. The Report only stated a collapsed area in descending Colon.
And a screenshot of the plain x-ray taken on day 7 of the Bowel Transit Study, I had in June 2021. The wee circles you see are radiopaque markers which come in lots of 10 sealed in gel capsules and taken one capsule per day. The last capsule has 6 rectangle shaped markers – 66 radiopaque markers in total.
Normal diet & no laxatives during study. Only '1' tiny marker made it through the obstruction that is at my splenic flexure. For years I'd been repeatedly told by the head colorectal surgeon at my local hospital that I did not have an obstruction and did not fit the criteria to have a colonoscopy.
I've never stopped looking for answers and had some private consults with some womens health physio's and it was the head lecturer of the School of Physio whom after a number of examinations suggested in 2018 I did indeed have an obstruction in my descending colon.
It causes me much pain & problems as you can imagine.

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Replies to "Bummer! I just lost my post so will start again. Do any of you have pix..."

It’s so nice to know that I am not the only one who has been passed off by the doctors. I had a botched surgery so the doctors afterwards would just give me the lame excuse that it was adhesions and that I have to live with the pain. Even at Duke, the same story. No one would note that my colon was tortuous. Attached is the colongraphy showing my torturous colon and was told that my rectus muscles were removed because of necrosis in my original surgery and this removed my support for my intestines. Why couldn’t the other doctors tell me this? Completely understand living with this pain, it is unbearable. Praying for each of you for God’s healing hand and peace and comfort. God bless