Rachel I’ve been hoping for further communication with you about my severe CSS. I feel so I’ll, like I’m headed toward dying - I have such weakness, neck pain, upper bk pain, burning headache, body aches and heaviness all over that I’m on the sofa most of the day. I do get up once ev 30 min for a short time. Adrenal exhaustion. Daytime sleepiness and sleepy after meals. I’m down to 96 pounds. My normal wt is 118. My BMI is 16. My PCP would be totally willing to refer me. Winters are horrible for me and I go to the Clearwater area then Nov 18 - May 31.. I do get some lessening of my symptoms there except Jan through May are horrible suffering which means I have to use more prescription meds for sleep.
Then I have more memory problems. I so terribly need help.