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Brain & Nervous System | Last Active: Sep 25 9:25pm | Replies (121)
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Replies to "Yes, Florida was very nice to spend 3 weeks at! Next year, when your daughter is..."
Sorry am slow responding-- so she was diagnosed in March 2021, and after failed meds and ganglion stellate block, we started ketamine in April 2021-- 3 weeks twice a week to begin, and now a booster treatment about every 10 weeks.. it's a rough few days after the treatments (completely exhausted and can't do anything)- but then the pain starts to lower slowly and can get as low as 2 or 3- which is great... Before starting these treatments, she was at an 8 most days-- As far as side effects- the actual ketamine is out of her system, from what I understand, within 12 hours-- but yes she is lethargic for a few days- but that's it.
Thanks for your comments regarding school-- even though she's a senior, we are considering helping her study for a GED so that then she can just do community college on her own terms-- as a full high school load has been so very stressful and increased depression/anxiety and she was barely able to pass last year. Concentrating and focusing for that many hours under pressure is just making things worse.. On a brighter note, I think her high school is going to allow her to continue in marching band-- the band director actually made her a special harness to allow her to continue playing the mellophone (her diagnoses are all in the left shoulder/arm/neck)-- so so thankful-- it's basically the last 'sport' she can participate in... thank you again for all of the great info!