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Mesenteric Panniculitis or Sclerosing Mesenteritis

Digestive Health | Last Active: Nov 6 8:25am | Replies (1517)

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@praggs

Hi - just joined the discussion today. My symptoms seem to have started with back pain in the soft tissue/flank area. Last spring I saw a doctor who took things seriously - did lots of lab work, CT scan etc to make sure all organs were working OK. In the CT scan they spotted the MP. She put me on a 10 day course of pred. and then had a 2nd CT scan that showed no changes. From there she was lost. The back pain has come and gone but it was different than any other type of back issue I've had before. She referred me to a GI doctor and I haven't seen her yet - talk about 6 months to get an appointment. So 3 weeks ago I started having sharp pains in my lower right abdomen - too high for appendix and too low for kidney. BEsides, all the lab work and CT scans showed no issues with those organs. It seems to flare up with the back pain and I'm wondering if that back pain has been a symptom of MP all along. I don't seem to have any food issues yet but the pain is intense so I have been taking tylenol or advil but I don't like taking any of those for very long. It's very depressing have this much chronic pain and I'm not sure what my next move should be. My GI appointment isn't until NOvember! I'm glad to have found this site to at least see what others are doing to deal with this.

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Replies to "Hi - just joined the discussion today. My symptoms seem to have started with back pain..."

Hi,
I was also diagnosed with MP early this year from a ct scan. It has really been a learning experience. I also have lower back pain and been to my primary twice thinking that it was a kidney infection. Both times everything came back normal. I was also having the pain on my left side mid way of my abdomen below my ribs. Very intense at times that I have to take pain meds. I have these knots under my skin that runs towards my navel. If I do to much they tend to get worse and the pain gets worse. So, I am real careful about how much activity I do and what I do. I had a colonoscopy and the light down my throat. The only thing that was found at that time was diverticulosis. I go from diarrhea to constipation all the time. It’s so hard to find a Dr. Who knows how to help you. It gets really depressing at times because it seems to be a constant struggle. You have to stay strong. I get up everyday and work. I may have to go home or stay home, but I try to continue on with as much normalcy as I can. Hope this helps some.