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Paresthesia, abnormal sensations

Neuropathy | Last Active: Mar 8, 2023 | Replies (85)

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@fisbo

Thank you for your lovely reply. I hope you manage your symptoms okay .....presumably they are similar are they? I will let you know what neurology say to me but I already know that there is not a lot they can do. I will tell them that it's got worse if course which it has and hope for the best outcome. Your right about grief though. This is certainly that I was fine two and a half years ago.

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Replies to "Thank you for your lovely reply. I hope you manage your symptoms okay .....presumably they are..."

You're welcome. I have Central Sensitization Syndrome (CSS) with underlying conditions of chronic back pain, migraine, small fiber neuropathy and heightened sensory sensitivities. I manage better since going to Mayo PRC almost 2 years ago. Symptoms remain a daily challenge because they're a permanent part of me now but one that I'm better equipped to handle.

PRC offers cognitive behavioral therapy to help deal with loss, grief and much more that's incorporated into living in chronic pain. They also focus on reducing or discontinuing unnecessary meds, which in some case can have an adverse effect on CSS. Learning through therapy helped bring the reality together that chronic conditions aren't going anywhere and how best to work at finding acceptance and strategies for life quality despite them. And of course a big part of management is physical therapy. Motion is lotion as they say in rehab, and finding the proper way to move our bodies and stay active actually helps us more than hurts us. It's about moderation and modification of activities.

How have you been handling loss and coming to terms with your condition? It's a tall order to fill, but can be done with work. Do you speak with a therapist?