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Continuous tummy pain post covid
Post-COVID Recovery & COVID-19 | Last Active: May 25, 2023 | Replies (40)Comment receiving replies
I have been to my PCP in person and via messaging at least once per week. I have had bloodwork including autoimmune tests. I have had 3 CT’s with and without contrast. I have seen two cardiologists, an electrophysiologist(he diagnosed me with POTS) From everything I have read, it is not uncommon for people with digestive issues to get POTS. I have also seen a Urologist, have had four UTI’s, had an MRI. I have an appointment scheduled with a Rheumatologist, am trying to get into a Neurologist and a new GI. I have also talked to a Psychiatrist (it is not in my head). I have seen 3 ER doctors and one hospitalist. I have had 2 home health nurses come out. I am sure I am missing something. I have been misdiagnosed with constipation, a pulled abdomen muscle, etc.. I also had a pill camera study, wore a 24 hour heart monitor where my heart rate went up to 165. Spent 5 days in the hospital severely dehydrated. Released the day my heart rate went up to 162 when standing! My GI won’t release me to see another GI(how is that possible in the US??). I do have a follow up with my Electrophysiologist next week for my POTS and found a GI 5 hours away at Baylor Houston who can see me Dec 28th. Mind you, I have already lost 18 pounds since late January.
Replies to "I have been to my PCP in person and via messaging at least once per week...."
@ilean, thank you for all the info, sorry to hear all you are going through. While I'm waiting for tests I'm going to try alternative medicine, some of the Dr's are continuously suggesting mental problems that is just putting her down, also saying she has low pain tolerance - really doesn't help. She hasn't had a endoscopy yet, hoping they will call us soon, the first GI she saw didn't bother doing more tests than 2 stool tests and said she didn't have a GI problem. Hoping this second GI takes it a bit more seriously. I have explained numerous times that just eating and drinking causes her more pain, she always feels nausea and generally vomits when in a lot of pain. Also she continuously has a headache, if her tummy pain is really bad it becomes a migraine and she gets dizzy. She had a tomography but with no contrast as this is all the paediatrician could send her, only the specialist can send her more detailed scans
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I was just diagnosed with POTS from having Long Covid. The gut/stomach issues have been the worse. I went on a very strict dairy free (including lactose and casein), gluten free and low anti-histamine diet. I am also taking prescription strength omeprazole 40 mg. My stomach has not hurt the last week. At this point, I don't care that I am eating chicken and pork chops and turkey most nights. The fact that my stomach doesn't hurt is worth it. I had also lost a lot of weight 8 pounds for me and it has now it has leveled off. I drink a lot of water during the day.