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Anyone here with Hurthle Cell (Oncocytic) Carcinoma?

Thyroid Cancer | Last Active: 23 hours ago | Replies (64)

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@cnicole

I was just diagnosed, but it definitely feels like the doctors are guessing on how to treat this. So many unanswered questions. My case was nodule that first tested benign in 2019, no growth in 2020 or 2021 and grew 26% from 2021 to 2022. I had another biopsy that came back suspicious from Vanderbilt and a genetic lab. I had a full thyroidectomy and the pathology report came back as hurthle cell carcinoma. The surgeon mentioned maybe radioactive iodine, but I’ve read that this type of cancer has shown to spread to lung, brain and bones. I have no idea yet how they can determine if it did spread in the years that it was growing. My hope is that you are feeling well and receiving positive reports 🙂

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Replies to "I was just diagnosed, but it definitely feels like the doctors are guessing on how to..."

Husband diagnosed in August. Radical neck dissection in September, nodes involved as well as soft tissue. Being treated with TSH hormone, keeping numbers as low as possible, also having his markers checked and this time they came back elevated. Doctor ordered CT scan with contrast and nodules 8mm and smaller showing in his left lower lung. Doctor states that a PET scan would not show because nodules are too small so wants to rescan in April to see if there is growth. We have registered at another university for a second opinion on the care plan.

Good luck and please keep me posted.