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PMR and exercise: What helps you?

Polymyalgia Rheumatica (PMR) | Last Active: 2 days ago | Replies (185)

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@raven1955

I agree with your statement about pain indicating inflammation. After all, taking prednisone is all about reducing the PMR inflammation in our bodies. We all want to get down to zero but if we allow the inflammation to increase and cause more and more pain we are missing the point, which is to get to the lowest EFFECTIVE dose that will control the inflammation. An increase in pain says we've gotten a little low with the prednisone dose and need to increase enough to know the inflammation back down. It's much more important to keep the inflammation under control than it is to get off prednisone. I for one will not risk ongoing inflammation triggering GCA and risking blindness. If we can control the pain and gradually get down to a very low dosage of prednisone we can then have virtually no side effects to potentially deal with from the drug. It's also important that blood tests used for PMR are not always accurate. The most accurate indicators for dosage are the pain level and fatigue. Blessing to everyone!

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Replies to "I agree with your statement about pain indicating inflammation. After all, taking prednisone is all about..."

My Rheumatologist said pain will probably continue for a month once off prednisone. Also that pain is t always an indicator that there is necessarily inflammation. They treat the condition not symptoms. For me losing bone density and elevation of blood sugars is an issue. Nightmare cycle for sure. Hope you are doing well.

Oh my gosh - I didn't know the on-going inflammation can trigger GCA. That is scary! However, my inflammatory markers were well within the low-normal range when I decided to taper off Prednisone, but I am still experiencing pain and stiffness, although not nearly as bad as it was when I was first diagnosed. If anyone can enlighten me more about triggering CGA I would love to hear from them. Regards to all. Also, does PMR every just go away?