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Anyone with Crohn's experienced convulsions after fainting?
Inflammatory Bowel Disease (IBD) | Last Active: Nov 17, 2022 | Replies (14)Comment receiving replies
@annewithane
Hi AnnE!
Love that clever handle.
I can certainly relate to your experience. I truly empathize with all you've gone through for such a long time.
Me too. Ugh.
I'm still in the hospital and lots of tests going on. Friday I'll have an EEG so that may give some answers regarding the strange (SEVEN !) convulsions I had on Saturday morning, following passing out after a trip to the loo, same as you! So worrisome. They're starting me on Dicetel (Primaverium) tonight, 50 mg 3x daily, so I'm hopeful again after so many misdiagnoses over the years, with no viable treatment.
I'm too weary tonight to answer you fully, AnnE, (lol) but I'm very grateful for your response. More later...! Warmest regards, Laurie
Replies to "@annewithane Hi AnnE! Love that clever handle. I can certainly relate to your experience. I truly..."
Wishing you all the best with your EEG today, Laurie👍 Hope you get some answers💞
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Oh boy, do I feel for you, Laurie😩 On this beautiful spring afternoon here , I'm currently horizontal in bed exhausted, nursing a bleeding bum, 10mgs of morphine in me and a hot water bottle on my side.
So just a quick reply with a little more food for thought and no need for a quick reply, Laurie.
A Bowel Transit Study this time last year revealed my tortuous colon and the rather large obstruction at the splenic flexure, in action. I have screenshots of the x-rays which I'll post in a new thread one day soon.
My second opinion surgeon referred me for it and when saw the results recommended I have a total colectomy! I want more investigation first. Have been requesting a colonoscopy for 11-12 yrs but no go. Twice in the last couple of years I've fallen off my loo with no warning.
Am booked for a colonoscopy on 2 Nov. at my hefty cost, at a private clinic.
Hope you get some answers soon.
Sending healing vibes your way💞