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Anyone diagnosed with Hemangiopericytoma (solid fibrous tumor)?
Cancer | Last Active: Mar 4 3:51pm | Replies (10)Comment receiving replies
@difabio3, welcome. By having started this discussion dedicated to hemangiopericytoma, I'm hoping others will join in, like @justk.
Fabio, can you share a bit more about you? What type of radiation did you get? While it was effective, why can you no longer get radiation treatment? Did you have surgery or radiosurgery?
Replies to "@difabio3, welcome. By having started this discussion dedicated to hemangiopericytoma, I'm hoping others will join in,..."
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I was diagnosed with a HPC in my occipital lobe five years ago. I had surgery to remove as much of the tumor as possible and 30 proton beam radiation treatments followed after. I have follow up appointments every 6 months and at times it was only 3 months. I am sorry to hear your HPC has reoccurred. I live with that fear as I was warned it is always a possibility.