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Central Sensitization - please share your stories

Chronic Pain | Last Active: Dec 20, 2023 | Replies (159)

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@rwinney

Good morning @irr4et. I'm so sorry about how you're feeling after these months of Ketamine infusions. Been there, done that. It's disappointing when a hopeful treatment doesn't provide the relief we hoped for.

I'm not an official "health coach", just a girl with a passion for helping others . Yes, my friend, I believe you are a candidate for Mayo PRC given your history of CSS, chronic symptoms and treatments losing their effectiveness, resulting in increased symptoms. If you've had the chance to watch Dr. Sletten's video about CSS, you will hear him explain about fueling the fire that burns within. What you're going through with Ketamine is an example of this.

Have you spoke with your neurologist or PCP about how Ketamine has made you feel? What do you think about a rehabilitation approach, treating the mind/body connection in a holistic way?

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Replies to "Good morning @irr4et. I'm so sorry about how you're feeling after these months of Ketamine infusions...."

Rachel I’ve been hoping for further communication with you about my severe CSS. I feel so I’ll, like I’m headed toward dying - I have such weakness, neck pain, upper bk pain, burning headache, body aches and heaviness all over that I’m on the sofa most of the day. I do get up once ev 30 min for a short time. Adrenal exhaustion. Daytime sleepiness and sleepy after meals. I’m down to 96 pounds. My normal wt is 118. My BMI is 16. My PCP would be totally willing to refer me. Winters are horrible for me and I go to the Clearwater area then Nov 18 - May 31.. I do get some lessening of my symptoms there except Jan through May are horrible suffering which means I have to use more prescription meds for sleep.
Then I have more memory problems. I so terribly need help.