Anybody diagnosed with microscopic colitis?
Hi, wondering if anybody here has this for a dx. I have been having a flare for about two months, it is getting a little better with the meds but the doctor wants me to go on a short dose of steriods. I already have a muscle disease so hate to go the steriod route, (plus do not need to gain weight) lol. But if anyone has any hints for me I would appreciate it on how to control this. It is the longest flare I have had.
Susie
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I Too am new to microscopic colitis. I haven’t spoken with my doctor yet. As far as I can figure out my colitis came from asides and prolesec and some pain meds
Continued. If I cut those out I can. Recover. Theoretically
Yes this is part of the autoimmune world. I have Lupus for 30+ years, Sjogrens, Raynauds and I was diagnosed with MC 2 years ago -
all related. I went gluten free and that made a big difference. I don't have Celiac; however, gluten does something to the digestive tract. You might try that. I have recently discontinued doing dairy as an experiment to see if there is any difference.
I have been having issues again and have an appt the end of the month with a new GI.
Prayers for good health again.
I read in a reliable source that autoimmune condition can cause this. I was just diagnosed and and trying other cures before any medicines, in my studies i ran across the auto immune
thank you, that is good news
I was just diagnosed with microscopic colitis in July at Mayo. I have been trying to get a diagnosis for 5 years at home. What are you doing for yours?
My mother has suffered from Lymphocytic Colitis since I was in kindergarten, I am now turning 31 years old. I have watched her suffer and see no end in the pain ever since. I have also witnessed her long time doctor resort to the use of morphine as a constipation aid when my mom decided that it was time for her to go back to work from being a full time stay at home mother to me. Between the severe diarrhea, unbearable stomach pain, and nausea that my mother has suffered with after giving birth to me, I can only imagine how helpless she feels as I feel just as helpless. My mother is the strongest woman that I know, and I have NEVER gone without as a child despite her condition. I just feel as if there must be a better way for my mother to deal with this. She is not one to go on to the internet to look for others suffering with the same condition. I feel as if it is the least that I can do to help her have the best quality of life that she deserves. I hope this post has not scared others away and I only want to gain knowledge of how to help my mom. Along the years of dealing with colitis she has gained a number of other health problems, however, I feel that if I start at the first problem I might be able to understand and be of more help to her.
Sincerely, Rinnie
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1 ReactionI've had lymphocytic colitis for almost 20 years, and was on budesonide (for too long) until my skin started scraping off. I changed to colestipol some time ago. It does control symptoms unless I cheat and have alcohol (rare!). What I hate about it is being chained to a kitchen timer all day long, to leave 2-3 hours between it and my other medications and supplements. I can't hear the timer if my hearing aids are out or my roommate turns it off (it's annoying!) and forgets to tell me. I'm considering asking for one of the meds that might effect my immune system. It's questionable, though, since I've had cancer twice and was poisoned with chemicals 30 years ago, so my immune system is probably weak. I'm fully vaccinated for COVID-19, and did not have any side effects (which might also indicate a weak immune system). Does anyone know of any NEW, STATE-OF-THE-ART medication that will not effect the immune system, but can be taken at any time during the day without regard to other meds??? I would go to MAYO, but I'm hoping I won't have to travel so far! Thanks in advance for any alternatives you might know about.
Mine started right after I had a child as well
I was diagnosed with UC in 2012 and was flare free between 2013 and Oct 2018. I had a flare in Nov 2018 and have not been in remission since then. The only thing that keeps me symptom free is Hydrocordisone Enema and a strick diet. Everything from Predisone, 6-MP, Remicade, Entyvio has failed. My GI doc has prescribed Tofa now (Xeljanz)
I dont know if it will work or if I need to take the enema for the rest of my life. I am 46 and hoping to be in remission (which has eluded me for the last 3 years)
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