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DiscussionNew to MAC and considering treatments options: What did you do?
MAC & Bronchiectasis | Last Active: Nov 19, 2023 | Replies (190)Comment receiving replies
Replies to "Your words mean quite a lot as not many don’t realize what MAC is all about...."
My friend, this is hard to hear, but you are at the beginning of your marathon. I'm not sure of your age or health history, but this is going to be your life for a year or so. Your symptoms should gradually improve but MAC took a long time to settle in your lungs and is going to take time to leave too.
I sense that you, like me, are not always patient when illness messes up your plans. Please be kind to yourself. If family and friends don't understand why you are not up to your usual activities, explain and think of other things you might do instead.
Try to explain what's going on - when my young nephew didn't understand I explained it was like when his friend broke his leg - cast, rest, therapy, crutches ...except mine was invisible. Older friends might get a comparison to chemotherapy- the meds make you feel worse in the short-term in hopes of being healthy long-term.
What is the hardest thing for you to handle right now?
Sue