← Return to Just diagnosed with Endometrioid Adenocarcinoma: What to expect?
DiscussionJust diagnosed with Endometrioid Adenocarcinoma: What to expect?
Gynecologic Cancers | Last Active: Dec 12, 2022 | Replies (239)Comment receiving replies
Replies to "I had my 3 month (7 months after my surgery) follow up last week and my..."
@cmb2022 That is shocking news and I imagine that your world is turned on its side or upside down. I had the same reaction when my nurse practitioner found a small mass in the vaginal cuff during a follow-up appointment. A few days later she called to tell me it was endometrioid carcinoma. Again. After a few phone calls back and forth I was scheduled for a PET/MR Scan (PET scan in an MRI so the team had the PET results that show activity along with the images of organs and tissues in my body. Fortunately the PET/MR was negative for cancer which meant no spread or new cancers anywhere else. Still, the recurrence needed treatment so I was scheduled to see the radiation oncologist who reviewed my results and came up with the plan. I had 25 external pelvic radiation treatments and 2 internal brachytherapy. I've had two follow-ups since the radiation therapy and nothing new has shown up. Still, I'm looking over my shoulder now more than when I was first diagnosed with Stage 1A, FIGO Grade 1 endometrioid adenocarcinoma. I thought I was done after the hysterectomy. But this is why these cancer surveillance appointments are so important.
That's a very long way of saying that I can imagine how you are feeling as I've been there. It's good that you are so conscientious about your follow-up exams and this is why this was caught so early.
Will you please come back and tell me about the PET Scan and blood tests and the results? Also, after you meet with the radiation oncologist will you please tell me what the recommendations are?