Starting it today, from ten to nine mg. I am hoping my neuropathy stays dormant so that I can very slowly reduce pred. My new gp (other one quit) despises pred, so is trying to find someone with CLIPPERS knowledge. So am I. No luck so far. I know someone in England, Bill Crum, who has been on azathioprine for several years. No progression of disease. He originally presented with leg problems. After three weeks of testing in hospital, he was diagnosed with CLIPPERS, and eventually, he was prescribed this non-steroidal drug. He is monitored carefully. Bless socialized medicine, it cost him nothing for all this.

Hi all

Hope everyone is as well as can be. Well, I’m now wheening of the 60mg steroids 20mg at a time and onto the immune suppressant mycophenolate. So far so good symptoms wise feeling a little more dizzy but getting around the house without my stick. Still getting physio which can tire me quite quickly and struggling with the 1 let stand and heal to toe walk but vast improvement since coming out of hospital. I had a throat X-ray today as still struggling to eat solids but slow and steady progress in all respects. My hiccups are less frequent and more controlled. What is driving me crazy is the constant wet feeling on the left of my face which feels like blood dripping from my head constantly. I’ve been given pills for this so see how it goes. Has anyone else experienced that kind of thing? Other than that I’m plodding on and hoping to be back to some sort of normality for Xmas. Again thanks for the support on here I’d be lost looking for info without the help I’ve received here. Keep ahold everyone and hopefully here from you soon
Dusty

Time will tell, I will see when neuropathy kicks back in hard. My gp and I are experimenting with dosages.