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Invasive Lobular Carcinoma Pleomorphic Level 3 (Oncotype Score 34)
Breast Cancer | Last Active: 6 days ago | Replies (36)Comment receiving replies
Thank you so much. They say they like to start treatments within 6-8 weeks post-op, and I can't get a second opinion that fast, they are booking out quite a few weeks. I am not sure how mission-critical that time frame is or if I have time to bump this off another week to allow for a consult. It is so hard to know what to do when research shows Chemo generally doesn't work on lobular, but the standard of care says to do it because it is based on ductal. I am at a loss for sure. I asked if chemo doesn't work if cancer moves, how does chemo work now, and got a skirted response that didn't really answer the question. I am so lost.....
Replies to "Thank you so much. They say they like to start treatments within 6-8 weeks post-op, and..."
Here is some information, just a bit, but it might be helpful. If only to add more context to conversations.
This is from the NIH
https://pubmed.ncbi.nlm.nih.gov/35137951/
It shows there is benefit in some cases of chemo with lobular cancer. That high oncotype number is the difference in this context. I hope you are able to have a second opinion and you have the right to put off chemo an extra week to get it and feel comfortable with your plan, but please don’t wait too long.
Are you currently scheduled for that second opinion?
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Find an oncologist who specializes in lobular. There is one at Dana Farber. Also there are advocacy and research groups for lobular that are accessible online.