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I am looking for others diagnosed with microscopic colitis
Digestive Health | Last Active: Oct 27, 2023 | Replies (198)Comment receiving replies
Gastroenterologist diagnosed me with lymphocytic colitis. This was after my 3rd colonoscopy and special test to detect blood which did show up microscopically. I had gall bladder surgery 4 years ago and have had persistent diarrhea since surgery. Also have had dramatic loss of weight from 130 to 98 plus extreme weakness. Would appreciate any sharing of treatment or medication that helps deal with this problem.
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@petepat3234 - I was first diagnosed with collagenous colitis 10 years ago- out of the blue. None of the OTC meds did more than allowing me out of the house for a couple of hours. At one point it was so bad I could not leave my room/ bathroom. The GI doctor then treated me with methotrexate. I was also extremely weak from loss of fluids and electrolytes. I drank Gatorade and Pedialyte. The illness returned after a year or two- waxing and waning, leaving me very exhausted and weak at times. Budesonide took the edge off symptoms and prednisone made me feel normal- until I stopped it. Finally, 4 years ago, I was put on immunosuppressive Imuran for several months. It was rough but it worked.
I ended up with normal function, except IBS, but feeling extremely exhausted. In my mind it is the result of chronic”acute” stress for years when there was pain/ discomfort every day - like being burned out.