This is such a challenge for you both! The uncertainty can be really unnerving. You are not alone!

For what it 's worth, I'm seen for Long COVID (LC) in Washington DC at the National Rehabilitation Hospital. (It's called the Medstar COVID Recovery Program now. ) The doctor who manages my care in general provided 3 really helpful referrals: 1) Speech pathology to help with the cognitive fatigue/deficits, 2) Group therapy, which touched on coping with all the major categories of struggle for LC, and 3) Neuropsych for evaluation to tease out what is physiological and what is not to better treat.

I'm going on 14 months with LC. I noticed that the mental and emotional symptoms (anxiety, irritability, etc that did not exist pre-COVID) started improving around the 9th month. This seems to be the case with a number of LC folks. It varies as to when it starts to improve by individual. Perhaps this helps provide hope!

Sending lots of prayers, positive thoughts and good vibes!! Keep hope alive!! 🙂

Hi
After i had covid last year, my behavior changed. It really worried me and was embarrassing it was exhausting to try to contain it.

I had a brain scan. The neuropsychologist who reviewed it said it was “not normative”. But there is no norm. My brain wAves were at extreme ends of the charts.
He was surprised i was so articulate .
I went go about 10 neurofeedback sessions. I was not sure it helped so i finally quit.
It still worries me but i dont know where to go with it.
Anyone else have ideas on gollowup?
Thank you.