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Complex endometrial hyperplasia with atypia
Gynecologic Cancers | Last Active: May 13, 2023 | Replies (29)Comment receiving replies
@meandmsjones I'm wondering if you had an endometrial biopsy in the office or if you had a D & C (dilation and curetage) with the hysteroscopy in a same day surgery? In a D & C more endometrial tissue is removed and pathology has more tissue to examine. My gynecologist was surprised by my results as he thought it would be hyperplasia. But it was endometrial cancer (endometrioid adenocarcinoma) and so I had a hysterectomy.
This is a difficult decision for you to make especially with the likelihood that you will go into surgical menopause after a hysterectomy. Would you like a second opinion? I recall in another discussion that you thought your insurance may not pay for a second opinion but this is you and your body so if you haven't already asked this is the time to do that. You could ask your gynecologist to make a referral for another opinion too. Here is the link if you think you'd like to go to Mayo Clinic for another opinion. You can self-refer and in the meantime check with your insurance too.
http://mayocl.in/1mtmR63
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Hi Helen,
Thanks so much for your response, I truly appreciate you. I do not think I had a D&C; I was in office, and I was dilated. But I think it may have just been a biopsy. She took three biopies; one of the cervix ( fragment of benign endometrial polyp), one of the endocervix (fragments of benign endocervical tissue) and one of the endometrium (Complex endometrial hyperplasia with atypia (endometrial intraepithelial neoplasia, EIN) occurring within an
endometrial polyp.
While my Ob was in there, she said everything looked good, and she didn't think what they saw on the ultrasound was even a polyp, she said it just looked like some tissue that was stuck in my cervical canal. Due to my many biopsies and two leeps, the opening to my cervix is quite small, so I also had a lot of scar tissue and some backup in my uterus. So again, was pretty surprised to see the results. I have had no further imaging or bloodwork done, and the oncologist did say they would not do more imaging. The ultrasound did show what they believe is a cyst on my right ovary, but they also are telling me it looks normal. So the recommendation is to move forward with a full hysterectomy, ovaries included.
I did call my insurance yesterday and Mayo is covered, so I a going to try to get an appointment, I am just not sure I can get the second opinion in time before the surgery. I don't want to delay the surgery as I have accepted that a hysterectomy is the best course of action, it's the concern about the ovaries and lymph nodes, with no real time pathology at my medical college.