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Central Sensitization - please share your stories

Chronic Pain | Last Active: Dec 20, 2023 | Replies (159)
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@irr4et

I have longtime CSS and had 33 hrs of Ketamine IV’s in May 2022, in hopes of finding a way to control pain. One of the risks is that it might cause some nerve damage. I had an allergic reaction to it during the 2nd wk and had to stop; the allergic reaction caused it’s own kind of pain and inflammation. Here it is Sept 19th and in last few days I have noticed weakness overall, but more so in my lower legs and feet. My legs ache and my feet burn. Each day it is sl worse. I fear I have nerve damage from the Ketamine IV’s. I am asking this ? to the health coach: Would the Mayo Pain Rehab Clinic in Jacksonville offer rehab for my situation? TU.

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Replies to "I have longtime CSS and had 33 hrs of Ketamine IV’s in May 2022, in hopes..."
Rachel, Volunteer Mentor | @rwinney | Sep 21, 2022

Good morning @irr4et. I'm so sorry about how you're feeling after these months of Ketamine infusions. Been there, done that. It's disappointing when a hopeful treatment doesn't provide the relief we hoped for.

I'm not an official "health coach", just a girl with a passion for helping others . Yes, my friend, I believe you are a candidate for Mayo PRC given your history of CSS, chronic symptoms and treatments losing their effectiveness, resulting in increased symptoms. If you've had the chance to watch Dr. Sletten's video about CSS, you will hear him explain about fueling the fire that burns within. What you're going through with Ketamine is an example of this.

Have you spoke with your neurologist or PCP about how Ketamine has made you feel? What do you think about a rehabilitation approach, treating the mind/body connection in a holistic way?

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