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Malignant Peripheral Nerve Sheath Tumor

Sarcoma | Last Active: Dec 6, 2022 | Replies (13)

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@colleenyoung

Welcome, @ricosoriano. So good to hear that surgery was a success and that the malignant peripheral nerve sheath tumor was removed. I'd like to bring in fellow members @sanzbozo @mbe111 @lizbhere @pkindron @julieparton, who also have experience with MPNST had treatments they had or didn't have following surgery.

Rico, were you told that the tumor was removed with clear margins, meaning that the entire tumor and a small margin of healthy tissue that surrounds it was removed? If yes, you might not need further treatment. If they suspect spread or the margins weren't clear, you might discuss chemo or radiation with your team.

How was surgery? What kind of rehabilitation will you require to regain mobility?

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Replies to "Welcome, @ricosoriano. So good to hear that surgery was a success and that the malignant peripheral..."

The tumor was located just near the back of my right ear so it was kind of an easy operation, no necrosis were found and yes a small margin of healthy tissues were removed. Just need to regain my sense of balance as I get dizzy still. I just got the histopathology result and is just waiting for my official talk with my doctor regarding further treatments, just wanting to have other's experience and point of view regarding this, Thank you very much!