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Malignant Peripheral Nerve Sheath Tumor
Sarcoma | Last Active: Aug 8 4:19pm | Replies (15)Comment receiving replies
Welcome, @ricosoriano. So good to hear that surgery was a success and that the malignant peripheral nerve sheath tumor was removed. I'd like to bring in fellow members @sanzbozo @mbe111 @lizbhere @pkindron @julieparton, who also have experience with MPNST had treatments they had or didn't have following surgery.
Rico, were you told that the tumor was removed with clear margins, meaning that the entire tumor and a small margin of healthy tissue that surrounds it was removed? If yes, you might not need further treatment. If they suspect spread or the margins weren't clear, you might discuss chemo or radiation with your team.
How was surgery? What kind of rehabilitation will you require to regain mobility?
Replies to "Welcome, @ricosoriano. So good to hear that surgery was a success and that the malignant peripheral..."
In 2005 I was diagnosed with a malignant schwannoma of my left thigh, located in the femoral nerve. After it was removed with safe margins, I received strong chemotherapy and radiation therapy. After 20 years, I am experiencing the late effects of radiation therapy, with nerve damage and muscle loss. Is anyone going through the same thing and has any treatment to at least halt the nerve and muscle damage? More recently, as a result of the muscle damage, I am having problems with my knee and a meniscus tear. I need help. Thank you.
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The tumor was located just near the back of my right ear so it was kind of an easy operation, no necrosis were found and yes a small margin of healthy tissues were removed. Just need to regain my sense of balance as I get dizzy still. I just got the histopathology result and is just waiting for my official talk with my doctor regarding further treatments, just wanting to have other's experience and point of view regarding this, Thank you very much!