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@shosh37

Hi all! I have collagenous colitis. Found out 3 months ago. I am suffering with distention daily. After I eat I get distended and I also have PFD. My colitis is in remission right now but I still have distention!! I can't wear jeans. I have fatigue. Also no period in 2 years and I'm 33. I'm seeing a reproductive endocrinologist next month to see if this is auto immune related etc .... Been dealing with this for so long! Anyone have similar distention?

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Replies to "Hi all! I have collagenous colitis. Found out 3 months ago. I am suffering with distention..."

Hi @shosh37, welcome to Connect! Distension can be very frustrating to deal with especially when you don’t know the cause. I see you already connected with @cdicicco in another discussion. I’d also like to introduce you to other members who might be able to shed some light by sharing their experiences.

Please meet:
- @gloriaeb, @luladavis, @uneeq1, @upnorthnancy, @nicole14 and others who are talking in the discussion called - I am a relatively healthy person with a problem "bloated belly" http://mayocl.in/2biTqQF
- @jgirlatlaw who started the discussion Mystery Abdominal Distention http://mayocl.in/2bGTavb

Shosh - We'll be interested in hearing what you find out at your appointment with the reproductive endocrinologist. @mjgarr was also asking if there is an autoimmune connection to colitis. What do you do to relieve the distention?

Constantly. If you saw me a year ago I had a body like a 20 year old, I am 66. Suddenly, my stomach looks like I am 8 months pregnant whether I eat or not. Nothing fits. I cry.

I went to Mayo for my first visit and have to go back to see 3 MDs in June. I have a history of CDIFF from antibiotics. I was on Avantin for a UTI, it's infusion. My stomach went down and a week later it was distended AGAIN