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Looking to connect with people who have non-diabetic neuropathy
Neuropathy | Last Active: 4 days ago | Replies (913)Comment receiving replies
Wow! Thank you so much for your post! I just this moment joined Mayo Connect and yours was the first post I noticed out of all. This is the first time since 2013 I have heard someone not only ask this question, but someone who described this very type I have, which is non-diabetic. I developed Neuropathy on dialysis but I was injured on dialysis which I believe is the original cause as I got nerve damage down both legs from it. Everything I look up on line only described Diabetic Neuropathy. I felt like I didn't exist in their descriptions, although I was able to use the info for myself. So I really appreciate you reaching out. You are the first I get to identify with! I hope you have a painfree feeling night!
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I also have non diabetic small sensory neuropathy and autonomic neuropathy. I also use marijuana but I prefer the THC gummy’s cause I don’t like to smoke it. I will smoke on occasions when the pain is off the charts. I also take gabapentin but I take it 3 times a day. I also am on Kratom for pain and this works better then opiates without any side affects, addiction and you do not feel anything as far as being buzzed. It also gives me a huge boost of energy. The ones I use at nights help me sleep and help with the night pain. I order my Kratom from a company online called MitraGaia. They have inexpensive ounces for $5.00 for you to try different ones. I take clonazepam which helps with the twitching and involuntary spasms. I have Requip when I get bolts of electricity running up my legs and then my legs go into a bizarre spasm, then it starts all over with the electricity going up my legs from my feet and then the bizarre spasm again. This is worse then pain or torture. It feels like my feet are being hit by a cattle prod. But the Requip helps with that.
This SFSN is a terrible disease to have. You will always have it and the pain and everything just gets worse and worse.
There is a lot of garbage information out there on Kratom. Most of it is produced by the Pharmaceutical companies because they would rather you use their drugs. The National Kratom Association will answer concerns and there is a documentary about Kratom on YouTube.
I’m so sorry you have this and I hope you can get relief from your pain.