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Electrical shocks throughout my body.

Brain & Nervous System | Last Active: Oct 16 5:59pm | Replies (118)

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@sdhkkjmz

I too am experiencing most of the identical symptoms you are. I have gone to numerous doctors and have gotten the same strange looks like I’m crazy. I have been shrugged at, had eyes rolled at me. I have begged to have someone take me seriously. No one seems to. Started with foot numbness and now hands are involved. I try to sleep (It’s worse at night). I lay in bed and it feels like an electric storm is happening inside me and I’m a lightening rod. I have no idea where the next moly might land. It has happened at any time of day but is worse in evening. I’ve had several EMG’s on legs and nothing is found. I’m at my wits end. I took it upon myself to contact Mayo and request an appt. I was denied being see in Rochester. I’ve had pins and needles and numbness in one foot since I had a total knee in 12/20. I woke and had this in foot and was not taken seriously. I scream and cry most nights and do not know what to do. I’ve had to beg for help but no one helps. I’m desperate and don’t know where to turn next. I don’t want to live this way.

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Replies to "I too am experiencing most of the identical symptoms you are. I have gone to numerous..."

Hi. In Medscape this week, there is an article written by a former medical journalist. It's directed to Drs. It says Long COVID should have been anticipated based upon "Chronic Fatigue Syndrome" (renamed as an encephalopathy) which destroyed his career and life. In the article, he described electric shocks as is referenced here. This is a neurological symptom of a post viral syndrome.
Medscape is for medical professionals and I don't know if anyone can access it directly. But please try to get someone to get it for all of you. Drs generally have not looked seriously at multi symptomatic syndromes and NIH had not given them resources. According to article author, Long COVID is changing that, and answers for similar conditions will likely benefit from the results.
I'm sorry you have been hurt by the mentality of some in the medical profession. Many exist exclusively in a small limited box of knowledge and dismiss, almost with contempt, anything that doesn't fit in. There are only about a dozen academic pioneering medical institutions in US which have the intelligence and resources - and will- to explore all patient conditions until they find answers. We can't all access these, but the Internet and transparency of information such as what Mayo Clinic offers can bring otherwise medically exclusive knowledge to everyone.
There's only 1 Mayo Clinic. The top. Number 1. And look how they have cared so much about suffering people as to provide so many informal services. And at no cost to anyone. Such a this Connect site. Information can reach us now in many ways.
So I encourage you and all who suffer from 'unrecognized' symptoms by medicine to RETAIN HOPE because answers will come, tho it may be slowly.