I kind of want to add, with seriousness of treatment that has worked for some of us, let's remember that age matters. I would feel different about a SCS for someone 40 than for someone 18 and running off to school, states away using borrowed money and all alone for the first time weeks after surgery - a scenario I am witnessing on another site - where she is 18, alone and yes, states away from family for the first time in her life and with an incision that won't heal. Scary stuff for a kid just in college and under so much stress already. What I can do retired is so different than when I was getting my degree, or working a very stressful job and I only had one week vacation time and couldn't take more time off in order to make rent. Or a single mom and feed the kids. We are so not a one size fits all. and I know we all know this but just wanted to say it again. There is no magic pill and I hate to say and it feels impossible when we are dying in pain, but things CAN always get worse.

I just want us to keep the age of the poster in our hearts when we talk about what worked at "our" now age and would we want that SCS or that mega dose of gaba put into/given to our 14 yo daughter. Just saying...carry on...