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Chemo for esophagus cancer: Any advice on things I should or not do?
I was recently diagnosed with Adenocarcinoma of the esophagus with her2 “positive”. I’ve been on one chemo pill and one infusion. The pills gave me ulcers in my colon along with every other side effect and I ended up in the ICU for 2 nights- 7 night hospital stay. Since then they haven’t started me on the chemo pills again (they said I need a break to heal) so I’m only on the infusion. My follow up pet scan is wed and I’m scared that only being on the one infusion just wasn’t enough. I’m trying to stay positive. Anyone have any advice as far as extra supplements or things I should or shouldn’t do. As of now I’m walking, take curcumin, vit d, acupuncture, cbd oil, that’s really it. Any positive info would be appreciated.
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Actually we saw his oncologist Friday. He is recommending immunotherapy versus chemo/radiation. His body wouldn’t tolerate another round of Chemo/radiation. He’ll start this in October, giving him another month to recover from surgery. Which is slow…
How's recovery going, Kelly?
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1 ReactionThanks for checking on us. Gotta admit, it’s tough. We’re 7 weeks out from surgery and he can’t barely tolerate anything by mouth. Has terrible nausea, vomiting and coughing. Almost every time he moves (walking), he throws up. He did have a minor case of pneumonia but I think we’re past that. We have a follow-up appt with his surgeon Tuesday. Hopefully he can shed some light on what’s going on.
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1 ReactionHow are you doing today after your surgery? Where did you have your surgery done robotically and by whom?
One year after surgery I feel good most days, some nausea if I happen to overeat. Surgery was done at Mayo Rochester by Dr Janani Reisenhauer. Her after surgery protocol was on J tube feeding tube for 6 weeks, first 4 with no food or water. As hard as that was, in hindsight, we believe it was key to allowing the surgical repair to heal. 13 months out, life is new normal but good which includes regular daily exercise.
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2 ReactionsThanks for your feedback. I am facing the chemo radiation then surgery. Are you able to meet friends for lunch/dinner go to parties etc? What changed in your life after the surgery?
Yes, now I can eat small portions of most anything. It was a slow road of trial and error but one day at a time. Still some days are better than others but blessed.
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1 ReactionBlessed is the word.
My mom has the opportunity to do immuno - what kind is proposed to you ?
What stage ?
Thank you
Hello what immuno was suggested ? What stage? Any reason why to want immuno after surgery?
My mom had surgery 2 months ago and same … she will start immuno in prevention
Thank you.