No doctors have never mentioned that before but my cousin has. My cousin’s daughter was diagnosed and the doctor told my cousin that she most likely has it too with her symptoms.
What drew me to this site was the craniocervical instability. I read the symptoms on your Mayo Clinic’s website and a lot jump out to me.
I experienced early on an electrical sensation in my neck. It sounded sort of like what a cluster of electrical wires sounds like.